Tag Archives: #parenting

Doing Good

12 Feb

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When the world seems to be falling apart, it is comforting to see the people you love trying to put it back together. One of those people is my son.

He’s a quiet kid. He’s shy and unassuming and once you are lucky enough to get to know him, he’s hilarious and kind and genuine. He still needs to work on the regular teenage stuff like being nicer to his brothers or answering me in a more patient tone. But all in all, he’s a truly fine human being and I am honored to have the privilege of being his mom.

In the fall, my son participated in a Midnight Run. Together with his friends and our synagogue he collected necessary every day items we might take for granted: soap, pillows, a warm jacket. On a cold November night, my son and husband drove into New York City and handed out jackets to the homeless. They helped people find the right size coat, the color they preferred, and ultimately the jacket that would keep them the warmest. They handed out jackets until there were no more jackets to hand out. But there were still people who were cold.

A few weeks later, I saw a segment on the news about a company in Michigan called The Empowerment Plan that was making jackets that converted to sleeping bags. The labor hired to sew these jackets is sourced exclusively from homeless shelters. These women are trained and given skills that will hopefully allow them to find full time employment. It was an incredible story to behold. I told my son about the jackets and he began an online fundraiser via Crowdrise to raise $5240 (the cost of 50 jackets plus shipping to NY), so he could continue to help keep our city’s homeless a little warmer.

With the help of many friends and family, more than $6000 was raised allowing for the purchase of nearly 60 coats. And on a cold January night, our family and my parents loaded the jackets into two trucks and drove to Hebrew Union College in The Village to distribute the coats to those patronizing their soup kitchen.

As we unloaded the coats onto a table and started demonstrating them for the people there, a small crowd began to gather. A very tall man was the first person to take a coat, explaining how happy he was because he has not been able to find a warm jacket that fits him in years.

We met a man named Matteo who sleeps in his van and was grateful to now have some semblance of a bed. He marveled at the utility of the jacket and how it was an item fashioned for those in need with respect for those in need in mind. He thanked my son and began to cry.

When a woman named Fatima saw the jacket, she broke into a wide smile and laughter, confiding that this was something she could really use. Her joy was palpable. She took a jacket and returned 15 minutes later just to talk to my son.

“You did this? How did you do this?”

My son explained his fundraiser. Fatima began to cry.

“I can’t believe you did this. You’re only 16. Do you know what you’ve done?”

And then she asked him for a hug. And they embraced.

When the shift was over only 5 jackets remained which we donated to the soup kitchen. Several hours later, after eating dinner at a local restaurant, we started walking back to our car. On the way, we passed Hebrew Union College. Outside was a man in a lawnchair, laughing with his friends, and wearing one of the jackets we gave him earlier that night.

Things have certainly come full circle. To have begun the Midnight Run program in our synagogue and to have ended this coat drive in the basement of a seminary was a beautiful living brush stroke of tikkun olam: repairing the world.

And the world is indeed in need of repair.While the country’s delicate seams have been mercilessly ripped apart, small acts of kindness, like this one, are the thread we all need to sew us back together. Because regardless of where we live or what we own, people are people are people. And yes, you do things for other people. You do it because it is the right thing to do. You do it because you can. You do it because you can make someone’s life better, even if it is just in the smallest way, like a giving a stranger a fresh bar of soap. But you also do it because it makes you feel better too. And it feels good to do good. It does.

My son may not always be the type who sits on my lap to hug me, or who holds my hand while I’m driving and rests his head on it, or who comes into my room to hug and kiss me as a study break. But I hope he is. I will never be too old to accept any of those expressions of love.

Soon my son will be going off to college. When he leaves the home in which he has grown up, I wonder if he is ready for what the world will throw at him. But mostly I want to know that he is a good person. That I am sending my best work, a really good human being, into the world. That he will love and be loved. That he will be kind. That he will help those who need it. And that he will be good. And he is.

My son is already repairing this world, doing great things, and giving back. He’s going to make his mark on this world. In fact, he already has.

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Things We Gained in the Fire

14 Dec

Have you ever had a fire in your home? Probably not. Fire happens to other people. Not to you.

Fire happened to me. And for a multitude of reasons and strokes of luck and fate, I was home and no one was hurt. But still. I did not expect to find the entire second floor of my home filled with smoke. I did not expect to find my bathroom wall in flames. I did not expect to find the need to call 911.  And yet all that happened in a matter of minutes.

Do you have smoke alarms? You should. Do you have fire extinguishers? You should. You should also make sure that they have not expired because otherwise, they’re just taking up precious space in your home in which you could store something that will help you should your house catch fire. And while we are on the subject, you should also make sure they are “ABC” fire extinguishers for all levels and kinds of fires. I did not expect to gain this type of education.

We have smoke alarms. Ironically, for a few weeks they were without batteries (also a no no) that my husband only recently replaced. While previously I thought of smoke alarms as annoyances, this one happened to save our house and possibly, our lives, as I never even smelled that smoke filling up the second floor of my home.

We also have fire extinguishers on every floor but I did not use them to try to put out the fire because I estimated I would first have to read the instructions label and I just did not have the time to do that. I knew the fire would not wait for me to figure out how to kill it and it was already speedily climbing up the wall and charring surfaces on adjacent walls. Do you know how to use your fire extinguishers? You should. You pull the pin and shoot.

Do you have a fire drill in place? A family plan? You should. We did not. I recalled seeing some kind of program that advised that in an emergency, you must direct specific people to carry out certain tasks. You cannot merely say “someone call 911” because someone may never get around to it. I told my son, Eli, to call 911, and I told my son, Ben, to get me a bucket.

My sweet friend, Stacey, has been sending me birthday gifts every year since college. Typically, they arrive on my birthday or the day before. This year, a tin of cookies showed up on my doorstep about 10 days early. Thank goodness. I used that tin to put out the fire.

I did not think about electrocution although I surmised the fire was electrical. I thought about my home. I thought about the place we love, the roof that shelters us, the kitchen and den and dining room in which we have shared so many wonderful holidays and memories, the deck where we love to entertain, the couch on which we gather to watch old home videos, and the bedrooms we retire to at the end of the day. I thought about this space that we love and that loves us and that this recent slight betrayal was going to end right now with me and several cookie tins full of water. I thought that if I did not act immediately, my house was going to burn down along with beloved irreplaceable photographs, ticket stubs from games my sons attended with their father and uncle, knitting needles owned by my adored Aunt Sandy, dirt memorialized from Yankee Stadium for Derek Jeter’s 3000th home run, a needlepoint of the alphabet my mother made for my sons, an old chenille cardigan that my beautiful late grandma used to wear, my son’s cherished stuffed Bunny, Cocky Pancho, my wedding band, and the dress I plan to wear to my sons’ b’nai mitzvah in April. I thought we could lose our history.

Then again, maybe I did not think at all. Maybe I just reacted out of instinct because you when you see flames threatening to destroy something you love, you just want to extinguish them. 911 instructed all of us to leave the house immediately. I sent my sons outside and I went back up the stairs. The fire was still contained to one wall which I took as a good sign. I wondered whether it was a bad idea to try to drown an electrical fire and whether I might short out my entire house. I wondered whether the fire could spread fast enough to trap me in my own bathroom. I also wondered where the towel rod went and if I was doing all the wrong things. I probably was. Perhaps I should have immediately left my home. Instead, I filled and refilled the tin with water and threw it at the fire until I could see no more flames. And then, wondering what might be lurking behind the wall, I threw a few more tins of water, dampening the area as much as possible just in case. And then I ran out the door in my socks.

Only then, while standing in our socks on the driveway waiting to hear the relief of sirens, did one son start to cry while the other one dribbled a basketball. But I told him about how lucky we are, about how we lost nothing we really cared about, and about the death of that goddamn fire. And then, after seeing many firemen and firewomen, and several police officers in and out of my home, we went out for dinner. Because life goes on.

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The fire happened the first night of Hanukkah. I never lit my menorah that night. Instead, we were evacuated from our home. The only thing I really worried that we might have lost in that fire – our sense of security – has been restored. And what we gained, hopefully reclaimed perspective, appreciation for all that we have, and gratitude for just how lucky we are, is worth much more.

Last night, on the final night of Hanukkah, we lit our menorah and slept soundly under the roof we love.

Shehecheyanu.

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Thankful for Human Kindness

26 Nov

— and Stephanie Robinson of Oxford

 

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Reservoirs of Hope

6 Oct

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I posted optimism in haste. I understand, I am optimistic by nature. I am also superstitious, however, and that should have given me pause. Regardless, I was hasty and we have seen immeasurable sadness.

My son returned to a fetal position on the floor, unable to contort himself enough to not feel pain. He winced, he punched pillows, he cried. I did too. “It’s not fair!” He screamed. I told him he was right. It was not fair. Life often is not. He is only 12. I wish I could know the pain he is feeling. I wish I could experience it so I could commiserate with him. I fear the pain I feel as a mother might be worse. I hope it is because I am abler to weather it than he.

He rearranges himself constantly, twisting around within and atop the quilt, like a giant stress ball but regrettably ineffective. Another very sad week to enter into the calendar.

“Tomorrow will be a better day” I tell him, just like my mother used to tell me when my day ran afoul. Each night I go to sleep an empty pot left beneath a leaky ceiling, allowing hope to collect in time for morning. Each morning I wake with expectation, yet it is always the same, if not worse. The pain still there, the agony unbearable for a young boy, and too much for this mother to witness. At what point do my empty promises reveal me to be an optimistic liar to my child. I cannot keep telling him that “tomorrow will be a better day” when it just does not come to fruition. Perhaps he should be more like his father: an over-prepared realist. Ready for and expecting the worst and anything less will be tolerable and even welcome. Then again, I’m not sure I could live like that either.

“Just sit here and look out the window” my mother used to tell me when I had a nightmare. It was also what her mother used to tell her to remedy the same situation. Inevitably, I would stare out the window and become distracted enough with whatever I may have noticed to have lost track of my nightmare. I wish I could stare out the window long enough right now.

“Just sit here and look out the window” my mother tells my son. But he cannot sit upright long enough without pain to complete this task. He again curls himself into a ball and weeps.

I wonder if this little boy knows how much he is loved. How much the lives of those who love him are thrown off by this spell. That his mother goes to sleep waiting to refill a reservoir of hope by dawn. That his brothers might be a little bit nicer to him. That his grandmother does not sound like herself when she answers the phone. That his grandfather makes frequent unannounced visits just to see how he is doing, just to look at his face, just to kiss the top of his head and rub his back. He is so loved.

Yesterday was the type of day you just do not expect when you wake up, even with a full supply of hope. When you confront a disease, especially one that afflicts your child, and you must contemplate therapies, sometimes none of the choices are good. All medications are accompanied by unfathomable risks and you find yourself asking doctors “is it at least a treatable Lymphoma?” as if that is an acceptable outcome. Simultaneously, compromising your child’s current health is not an option. Pile on the relentless pain and decisions are suddenly made amidst a pressure cooker of love and concern and the need for a young child to simply find some rest.

I refused to allow the nurse to provide a detailed consent, particularly in front of my son. I do not want to know the risks they are required to tell me by law. I do not want to know about minuscule possibilities of terrible things that may await us. I do not want to know about something that might have happened to a lab rat that received 1,000,000 times the allowable dose. I want to see my son well. I want to see his smile again. I want to see him be a 12 year old boy.

Several hours later, following his first IV infusion therapy, I did just that. Now he is at school. He is sleepy, he is concerned, but he is smiling. Today is a better day.

My pot is full.

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Sailing

21 Sep

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We are drifting aimlessly on the sea. The water is so placid even our boat does not create a ripple. We stretch back and let the salty air wash over our sun-kissed faces. We are good.

And in an instant, the sky turns dark and stormy and our boat is upended. We are swallowing the sea water that protected us just seconds earlier. We are desperate to right our boat, to climb back into its safety, to escape this disastrous storm. But it takes time.

This is what it is like to live with a chronic illness. One minute you are navigating innocent waters and the next minute you are laying with your son on the cold tile of the bathroom floor, struggling to find stillness.

Last week, out of nowhere, our boat was toppled. My son experienced what can only be described as “labor pains” for nearly a week. He winced, he cried, he dug his nails into the flesh of his wrists to feel something other than agony. And with each tear that traveled down his cheek, the vise around my heart tightened its grip. I tried to act casual, I cried and told him I wish it was happening to me instead, I tried everything. There is literally nothing I could do to soothe my son, to make it better, to be his mommy.

“Can’t you just hug me and make it go away?” He cried.

Oh, how I wish.

On Friday morning, after a long and very sad week, my son woke up feeling no pain. He later called me from the nurse’s office at school:

“I have good news and I have bad news. The good news is that my stomach feels fine. The bad news is that my wrist bent back in recess and then I fell on it and it hurts a lot.”

“So you have good news. I love you.”

Later that day, my son managed to take his iPhone for a night swim. He called me from his friend’s house in such distress that it was difficult to hear actual words.

“I’m an idiot. I did the dumbest thing. You’re going to kill me. I’m sorry. I’m sorry. I’m so sorry.”

“Are you ok? How do you feel?”

“I feel fine.”

“So you’re ok.”

I told him I don’t care. I told him it’s just money. I told him I’m just happy he feels good. I told him to hang up with me and go be a kid.

When I picked him up that night, he again cried, saying he made a mistake.

“I’m glad you did. That’s how you learn. You will never go swimming with your phone again. I make mistakes, Dad makes mistakes, we all make mistakes. It is part of life and no one gets out of here without making some along the way. And by the way, you mean way more to me than a phone.”

The following day was spent going to Urgent Care and getting X-rays for his wrist. As we drove to the clinic, my son reflected on the broken phone and the possibly broken wrist.

“Yesterday was the worst day, Mom.”

“Yesterday was the best day.”

“No, I mean because of my phone and my wrist. So it was a really bad day.”

“Yes, but you woke up feeling fine and your stomach no longer bothers you. Your phone can be replaced. Your wrist, even if broken, will heal.  These are things that happen to everyone. But you feel good. So it was a great day.”

When the dark clouds gather and the storm rolls in, I worry that my son’s whole life will be like those moments on the bathroom floor: a tiny ship tossed around helplessly in a maelstrom. I remind myself of the things I must believe in: medicine, Hope, and my son. I remind myself that this disease should be the worst thing that ever happens to him. I remind myself of the serene seas in which we have been fortunate enough to sail. And then I look out for those starry nights, the traditional harbingers of the promise of beautiful weather ahead.

The phone was irretrievably broken.

The wrist was not.

And neither was my heart.

And our ship is again floating under a beautiful, cloudless sky, hoping for endless starry nights.

The Luxury of Watching Our Kids Dream

27 Aug

 

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My son is curled up beside me. He cannot sleep. This is the second or third night in a row. Always the same. He cannot sleep. He nestles in next to me, his head fitting perfectly in the spot between my neck and my chest, his legs wound around mine so many times I wonder if they are boneless. Within minutes, his breath deepens and slows. He is asleep.

I wonder how much longer it will be that I can provide this instant consolation for him. How much longer that he will let me. How much more time do I have of the luxury of watching him dream.

My friends have children going off to college. They are decorating dorm rooms, setting up proper desks, buying school supplies and filling meal cards, all the while trying to forget that their kids are leaving the nest and learning to fly on their own. It is hopeful and heartbreaking and wondrous and devastating all at the same time. I have watched these kids grow up; they are not even mine and still, I am struggling with the passage of even their time. Because soon, it will be my kids. I know that that is years away for me but I also know the way time works and that I have seemingly months. It is like trying to reverse the mileage on your car but there is no such magical gear and it is inevitably impossible. And at the same time, it is Life. And it is good.

He grabs a lock of my hair and rolls to the right. He is content. And so am I. And again, I watch him dream. Because I still can.

The Scream Chart

3 Jun

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Raising kids is challenging.

I remember when my babies were babies, strung out on hours of lost sleep and coffee, and patience frayed, I snapped. I screamed at my kids so loudly that I was hoarse for a couple of days. I was plagued by guilt. I was certain that all the hours I spent loving them, playing with them, laughing, watching and rewatching Wiggles videos (that is love for sure) would be outweighed and even forgotten by those intense moments of primal hollering.

I thought myself the only mother that ever yelled at her child. After all, everyone is always on their best behavior when you see them and if they’re not, can you just imagine what kind of monster they must be in their own home? Unable to shake myself of remorse, I asked a wise friend if she ever yelled at her kids. Her reply, which stayed with me, was “we all scream inside our own house.” She was right.

Sometimes we do lose patience. Because we are human. And while I have not lost my voice again since that time when my babies were babies, I still raise it here and there, mostly because no one seems to listen the first 8 times I say something.

Recently, my son complained that there was too much screaming in the house. To be precise, his belief was that one of the five of us, at the very least, yelled every single day. I was surprised at his perception of how our home functions; probably because I’m more of a positive person and definitely because I am his mother. Regardless, he should not feel that way and if, to my horror, that was accurate, we would all have to change because I wouldn’t want to live in that house either. I decided it was time to experiment.

I made a “Scream Chart.” For an entire week, my son was to track our “screaming activity” and assign a tick for anyone who screamed. If someone yelled more than once, they received more than one tick. No one was to behave any differently than usual (not that we are all self-aware enough to act otherwise) and frankly, no one did.

One week later, I approached my son to review the final results of the Scream Chart. Lo and behold, there was very little yelling in our home that week, similar to every other week, except, apparently, for Sunday (I cannot remember what occurred and I am pretty sure I don’t want to either). Indeed, throughout the school week, there were only two incidences of shrieking (although, to be fair, a raised voice counted just as much as outright caterwauling) and one of them belonged to the very son who thought there was too much yelling in the house to begin with.

Perceptions and misperceptions are so important. I hope my son remembers to lean towards the positive memories and viewpoints as opposed to coloring our world with darker shadows just because someone screams here and there. I always tend to remember and view things more fondly (except for laboring 23 hours to deliver this same child; that was pure agony) and I think it has served me well. It has also provided a grounding optimism sorely needed for challenges faced along the way. I explained this to my son. I discussed the value of believing in good and happiness over constant misery. I told him that just because someone in a family gets angry (which happens! people living together are bound to bounce off each other at times!) doesn’t mean it is an angry family.

About a month later, I checked in again with my son. His perception of our family’s life together had thankfully changed. He no longer believed that there was daily bickering and acknowledged that part of the screaming he had to endure was his own. There are so many things I feel I don’t get right as a parent, but I was so grateful to be able to change his appreciation of his own life. He should think better of it. And I am so glad he actually does.

Had that Scream Chart filled out according to my son’s expectations, I would have been devastated. I would hate to think that this family we have created out of love and desire and joy would be so overshadowed by constant conflict. Although 18 years sounds like a long time to raise a child, it moves faster than I would have ever imagined. Those 18 years should be a filled with laughter, beauty, kindness, love, and warm, screamless nights.

Swinging the Bat

13 May

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I do not know how you measure success.

Is it wealth, fame, good health, love, all of them, none of them. I don’t know.

Maybe it’s just making an effort you thought you could never make.

My son is on his school’s baseball team. I am not betraying him when I tell you he is not the best athlete on the team. But he loves being on a team and part of a team. Recently, my mother told me she had a conversation with my son about his method of playing. In essence, his approach was to never swing with the hope of getting walked to first base. This was heartbreaking to me. I was also unaware of it because he instructed me not to attend any games because he was mainly in charge of keeping the bench very warm. Although I am not exactly athletic, I confronted him:

“You need to swing the bat. Even if you miss. You still have to try because you will miss 100% of the balls you don’t swing at.”

I am not sure if he was frightened of the speed of the ball, the shame of an earned strike, or just simply taking a chance. He promised he would try. And with that, he was able to allow someone else to keep that bench warm, at least some of the time.

Academically, my son is, for the most part, thriving. He has recently struggled, however, with a couple of subjects and was less than thrilled about grades he received. I’m not exactly sure, though, that he was swinging the bat at those plates either. We had multiple, similar conversations about the importance of making an effort, trying your best, aiming for a hit instead of a walk. I’m not sure how many of these talks sink in or how many translate to the Charlie Brown teacher language of “WOH WOH WOH WAH.” My expertise and life experience are not impressive to him. It seems not to matter that I have already lived all the days he is living. He probably just wants me to stop talking. Oh well, too bad. It’s my job.

This combination of some poor grades and baseball ineptitude was starting to wear on his confidence. I cannot blame him though, again, he wasn’t actively participating in his own life enough to change his situation. It is hard to watch your child struggle with self-doubt and think you can give them all the tools and praise needed to remedy it, but it is, ultimately, up to them to cure their problems themselves.

Yesterday, on one of spring’s most beautiful days, and with my son’s blessing, I finally attended a baseball game: my son’s team’s last home game of the season. My son was at bat. He swung a few times, accruing two strikes. His team and coach continued to call his name, encouraging him. On the final pitch, as the wind blew its warm, gentle breeze over the field, I sat in a lawn chair and watched my boy make his very first hit. It was solid. It went to third base, and he made it to first base safely with his team cheering him on. And later, during the last inning, and only minutes after my husband arrived, we both had the privilege of watching our son make his second hit, into the field, right over second base. Again, his team cheered. And so did we.

While I have been largely focusing on the importance of his school work, perhaps excelling here, on a baseball diamond with friends and teammates, is just as important. He needs to feel good about himself in all arenas, and those two hits, likely inconsequential to most kids on the team, were home runs for all of us.

Had my son not swung, he never would have hit those balls. He never would have known what the impact of the ball against the ash in his hands would feel like. He never would have known that he too could create that familiar “crack” symbolic of a hit. He never would have known the joy of hearing his friends and teammates root for him and the thrill of reaching first base because he proactively earned it as opposed to watching for the pitcher to err. He never would have known what it was like to cross home plate on that beautiful spring day, the completion of the story that began with his first hit. This type of knowledge he gained is every bit as useful and meaningful as the type learned from a textbook. If not more so.

Maybe success is just swinging the bat.

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My Mother’s Party

22 Apr

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I was born in the middle of a winter storm.

I look at pictures of my mother, pregnant with me, holding me, standing with me then, now, throughout the years, and always she smiles. Most times, when you take a picture of someone, you tell them to smile. You say “cheese.” You pose. You capture a tiny choreographed moment in a lifetime that is hopefully a good memory.

I look at these pictures of my mother. Someone may have told her to pose. Someone may have said smile. Someone might have said “say cheese.”

My mother did not need any of this sort of prompting. These pictures of my mother are real.

I look at my mother from the point of view of a child, a teenager, an adult, as a mother of children myself, then, now, throughout the years. And always, she smiles. Her moments are not choreographed. She is a person who sees and does and is the best. And she smiles. Always.

I know very well what it is like to be a mother. I know what it is to lose your patience and your temper and at times, your heart. I do not know this from watching my own mother. She never displayed it though it is hard to imagine my brother and I did not, at times, compel her to feel it. I also know what it is to fiercely love your children, to know a boundless, intense adoration. This, I learned from my mother.

You may all know what it is like to have my mother as a friend, an aunt, a cousin. Can you just imagine what it is like to be her daughter. It is a gift beyond measure.

In the middle of that storm I was born in, I imagine my mother smiled. I imagine she still saw the sun beyond the snowy sky, just waiting to shine. I imagine she took it all with the same grain of sand she manages to take all the storms she has weathered in her life.

She tells me how it was a cold winter and she used to swaddle me in so many layers she could not see my face, just so she could take me for a walk outside. This is the perfect analogy for how my mother lives her life. She layers herself and those she loves with enough protection and she goes outside for a walk. She does not let a little cold or a snowstorm stop her. She goes outside.

Almost 15 years ago I gave birth to my beautiful son, Charlie. I think it was the happiest day of my mother’s life. And, only one year later, she retired from her full time teaching position to be a full time grandma, a role she has taken on with joy and dedication. My mother traveled into the city every Wednesday night, at a minimum, to see her beloved Charlie, who was just a baby. But he knew. He knew her. He knew her presence. And he loved her.

And three years later, she completed her grandson trifecta with my boys, Ben and Eli. I don’t know if my sons realize how good they have it. How fortunate they are to not only live around the corner from my mother but also to live inside her heart.

She turns every day, every moment spent with them, into an adventure. She does not ever babysit. She babyacts. She finds books, movies, travels, parks, attractions, shows, and events which will spark the varying interests of each different boy and she gleefully spends her retirement money and time on making their very dreams come true. She is incredible.

My mother is a living, beating heart, that pumps love and life through all of us. She is the sunshine that warms us. She is the clear sky we all look to. She is love.

I am so very happy to see my mother to 70. I am so blessed and lucky to see her age, to have her here, to see her with my children, to spend time with me. Each line in her face was earned by years of these smiles, these natural postures, these moments of genuine love and bliss.

Mom, It is, by all accounts, a joy and an honor to be your daughter, to receive your love day in and day out, to be by your side.

Happy birthday, Mom.

I love you then, now, throughout the years, always.

Living the Dream

24 Mar

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Exactly a year ago, my son was diagnosed with Crohn’s Disease. When you receive a diagnosis like that, as a mother, you want all the information you can get and yet simultaneously, you want none of it. You want a crystal ball to know what your child’s future will be like and at the same time, you do not want that kind of knowledge. You imagine the next year of your life and you fear it. You envision terrible pitfalls and tears, and still you cross your fingers and hope you will be one of the lucky ones.

My son is one of the lucky ones.

My boy has wanted to perform for as long as I can remember. Prior to this year, the two shows in which he acted have been mere displays of adorable children as opposed to any type of pageantry of talent. About two years ago, my then 9 year old son, while spending his free time in school scouring Backstage.com and Variety for notices for open calls for children, seized on an audition being held in the city for a Broadway show. He prepared his own resume, which included gems like:

Dancing Training: None (I’m still good though)

Acting Training: None (I can cry on the spot)

Vocal Training: None (I can sing in the shower)

He also included a mandatory school performance among his acting credits. He pasted a Photo Booth picture to this paper and fearlessly dragged my unsuspecting father into Manhattan.

About three hours later, my father called me:

“You and your mother are crazy! We are in way over our heads! There are kids tap dancing up and down the hallways. Some are wearing jackets from the shows they have been in. Others are here with their agents and managers.”

I was more than reluctant to let him go and get his heart shattered but I also thought, maybe this level of competition would be eye opening for him. Needless to say, he did not get any part in that Broadway show but he was nevertheless encouraged by the supportive words given by the panel who auditioned him.  I reminded him that if he truly wants to be involved with theater, there are multiple behind the scenes ways in which to do so: writing, directing, producing. He not only did not want to hear it, he turned to me and shouted:

“YOU’RE A DREAM KILLER!”

And with that, we shelved the conversation.

Last weekend he performed in his first middle school show, 42nd Street. He was cast as Bert, a role to which he brought humor, joy, and, to be honest, talent. He tap danced circles around my heart. He made me laugh. He made me cry. He made me downright giddy. And most of all, he made me so very proud.

Who am I to kill anyone’s dreams? Especially those belonging to my sons. How can they dream at all if their own mother is constantly whispering threads of reality to them? They can’t. Part of being a child is dreaming dreams that are our own. Hopefully, those dreams will guide us along the paths we want to pursue, and in some cases, maybe even come true. Maybe not the dream of another son of mine who wants to play for the NBA. But it is not my job to extinguish it.

Sometimes we learn the most important lessons from our children. Yes, we learn the importance of dreaming. But we also learn the importance of living our lives without limitations: without diseases which may confine us, societal notions which may hinder us, and parents which may hold us back.

A diagnosis of exactly one year ago has just become a tiny part of who my son is: a multi-dimensional, sweet, talented, driven, loving, realistic dreamer. It is a luxury to be on the other side of this year, to have this knowledge, to see our future become our past, to have looked at that crystal ball and know everything is going to be all right. And most important, to know that we all are, indeed, the lucky ones.

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